The dying neonate – a mother’s perspective

An article written by the mother of a critically ill 24 week gestation infant describes the emotions that parents experience when in the throes of intensive care decisions. There are tips to NICU professionals on how best to interact with the family around decisions to redirect care away from intensive care to comfort care only. Among them: “Above all, remember this is a decision the parents always have to live with.”

Personal reflections on end-of-life care in a newborn infant. Ryan 2012.