Medically complex children and transition to home

In a qualitative study from one tertiary center, 23 family members of children with complex medical conditions and 16 health professionals were interviewed to identify needs when transitioning such children from hospital to home. Families had needs in 7 domains (health professionals opinions were largely concordant): effective engagement with health care providers, respect for families’ discharge readiness, care coordination, timely and efficient discharge processes, pain and symptom control, self-efficacy to support recovery and ongoing child development, and normalization and routine.

Families priorities regarding hospital to home transitions for children with medical complexity. Leyenaar et al, 2016.